Wednesday, April 16th 2014

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Spinal Cord Injury Information

Information on Spinal Cord Injury Research, Treatments, Medicines and Quality of Life

SpinalMap eBook

Published: March 19, 2014

SpinalMap-ebookSpinalMap: An Essential Read for Partners, Friends, Colleagues and Care Givers of SCI patients.

SpinalMap, has been described by a rehab professional as an “essential read” for both recently injured people as well as family, friends and associates of people who have suffered spinal cord injury. Continue Reading »

Spinal Cord Injuries in Young People

Published: January 10, 2014

Dr. Paul SmolenSpinal cord injuries often involve young people but few teens and college students understand the potentially life threatening risks that come with playing many popular sports. Unfortunately, with their youth often comes a feeling of invulnerability, and the belief that they are impervious to injury. It’s all part of being young, but all it only takes is one fall, or one bad tackle to turn a cheerleading stunt or football game into a literal nightmare. Spinal cord injury awareness is often overlooked during training, possibly because concussions and other more common injuries take the forefront. Continue Reading »

BOOK: “My Last Step Backward”

Published: December 19, 2013 | Spinal Cord Injury:

My-Last-Step-BackwardCrowned Ms. Wheelchair USA 2012 and winner of the National Rehabilitation Champion award, Tasha Schuh continues to travel and share her story of resilience and triumph over her tragedy.

“My Last Step Backward” is Schuh’s first book about her erudite journey as a quadriplegic, beginning with her pre-accident years as an adolescent to the details of the accident, her near-death experience following surgery and her life during and after recovery.

“It traces my journey from the depths of despair to my realization that life goes on and it is what you make of it,” Schuh said. Continue Reading »

Two-way traffic in the spinal cord

Published: December 19, 2013

Two-way traffic in the spinal cordThe progress a baby makes in the first year of life is amazing: a newborn can only wave its arms and legs about randomly, but not so long after the baby can reach out and pick up a crumb from the carpet. What happens in the nervous system that enables this change from random waving to finely coordinated movement? Scientists from the Max Planck Institute of Neurobiology in Martinsried near Munich, working with colleagues from New York and Philadelphia, have described a new type of nerve cell in mice which provides a valuable insight into this developmental phenomenon. During embryonic development, the projections from these cells grow from the spinal cord towards the brain. They may pave the way for other nerve cells which control voluntary movement and which only grow from the brain into the spinal cord after birth. Continue Reading »

Saving Children’s Spines

Published: December 18, 2013

Saving Childrens Spines(NAPSI)—While between 1,500 to 2,000 children and adolescents sustain spinal cord injuries every year, you can help keep your kids out of such statistics.

The spinal cord is the bundle of nerves inside the backbone. It controls voluntary actions-moving arms or legs—and involuntary actions—digestion or breathing.

Spinal cord injury can result in paralysis and disruption of bowel, bladder and sexual function. Such injuries can also affect all areas of life, including relationships, mental health, independent living, education, employment and overall satisfaction with life. Continue Reading »

Reconciling Life and Quadriplegia

Published: December 5, 2013 | Spinal Cord Injury:

Reconciling Life and QuadriplegiaHealthcare providers tend to think paralyzed people have a very low quality of life. Actual spinal cord injury survivors tend to feel differently.

Earlier this month, a 32-year-old husband and father fell 16 feet from a tree while hunting, broke his neck and was left paralyzed from the neck down—making him quadriplegic—and reliant on a ventilator to breathe. According to the Indy Star, while he was still in the intensive care unit, in the early phases of his injury, his family told his health care providers that they didn’t think that he would want to live as a quadriplegic. According to the story, the doctors discontinued his sedation, and he awoke enough to verify that he did not wish to live as a quadriplegic. The doctors discontinued life sustaining measures and he died about five hours later, surrounded by his family and friends. Continue Reading »

Spinal cord injury: as many as 500,000 people suffer each year

Published: December 2, 2013

As many as 500,000 people suffer a spinal cord injury each year. People with spinal cord injuries are 2 to 5 times more likely to die prematurely, with worse survival rates in low- and middle-income countries. The new WHO report, “International perspectives on spinal cord injuries”, summarizes the best available evidence on the causes, prevention, care and lived experience of people with spinal cord injury. Continue Reading »

10 Things You Shouldn’t Say to Someone Who Uses a Wheelchair

Published: November 21, 2013

Rachelle FriedmanI’ve heard some pretty crazy things come out of people’s mouths in my few short years as a wheelchair user. Most people definitely mean well, but some sentiments aren’t received the way many able bodied people might expect.  In the disabled community, it’s not uncommon for us to joke with each other about some of our interesting conversations with family, friends and strangers that often involve some off putting statements. below are the top 10 things that I’ve heard people say since my injury that don’t necessarily leave me with a warm and fuzzy feeling. –Rachelle Friedman Continue Reading »

Halloween Costumes for Wheelchair Users

Published: October 31, 2013

wheelchair-halloween-costume-batmobileIf you’re a person who uses a wheelchair, it can be a challenge trying to decide what costume to wear for an upcoming Halloween party. But, if you spend some time online, you’ll find plenty of Halloween costumes that you can make yourself without spending a lot of money. Whether the costume is for an adult or a child in a wheelchair, there are a lot of creative suggestions to be considered. Here are some ideas for costumes that involve a wheelchair. In addition, here are several websites with costume suggestions including the materials needed and the steps to follow to successfully create a look that will make you the talk of the party. Continue Reading »

Rachelle Friedman, ‘Paralyzed Bride,’ Speaks Out: More Than Equality, We Want A Cure

Published: October 4, 2013 | Spinal Cord Injury:

Rachelle FriedmanEver since my injury three years ago I have been determined to show the world that people with disabilities can be just as happy, independent and productive as those without disabilities. But is it possible that showing such positivity could mask our daily hardships to the point that the urgency for a cure is diminished?

Don’t get me wrong, it’s important that society knows that we are more able than most would imagine. But sometimes it feels like that is the only message we’re getting out. What about the desire for a cure? Continue Reading »