As many as 500,000 people suffer a spinal cord injury each year. People with spinal cord injuries are 2 to 5 times more likely to die prematurely, with worse survival rates in low- and middle-income countries. The new WHO report, “International perspectives on spinal cord injuries”, summarizes the best available evidence on the causes, prevention, care and lived experience of people with spinal cord injury. Continue Reading »
Spinal Cord Injury Information
Information on Spinal Cord Injury Research, Treatments, Medicines and Quality of Life
I’ve heard some pretty crazy things come out of people’s mouths in my few short years as a wheelchair user. Most people definitely mean well, but some sentiments aren’t received the way many able bodied people might expect. In the disabled community, it’s not uncommon for us to joke with each other about some of our interesting conversations with family, friends and strangers that often involve some off putting statements. below are the top 10 things that I’ve heard people say since my injury that don’t necessarily leave me with a warm and fuzzy feeling. –Rachelle Friedman Continue Reading »
If you’re a person who uses a wheelchair, it can be a challenge trying to decide what costume to wear for an upcoming Halloween party. But, if you spend some time online, you’ll find plenty of Halloween costumes that you can make yourself without spending a lot of money. Whether the costume is for an adult or a child in a wheelchair, there are a lot of creative suggestions to be considered. Here are some ideas for costumes that involve a wheelchair. In addition, here are several websites with costume suggestions including the materials needed and the steps to follow to successfully create a look that will make you the talk of the party. Continue Reading »
Ever since my injury three years ago I have been determined to show the world that people with disabilities can be just as happy, independent and productive as those without disabilities. But is it possible that showing such positivity could mask our daily hardships to the point that the urgency for a cure is diminished?
Don’t get me wrong, it’s important that society knows that we are more able than most would imagine. But sometimes it feels like that is the only message we’re getting out. What about the desire for a cure? Continue Reading »
Finding a solution for brain and spinal cord injury
The Fournier lab at the Montreal Neurological Institute is working to answer a fundamental question: what happens after a nerve cell gets injured? Damage to nerve cells in the central nervous system (CNS), which consists of the brain and the spinal cord, often means permanent damage due to these cells’ limited capacity to repair and regenerate.
Unlike many other cells in the human body, adult nerve cells in the CNS cannot spontaneously repair. Hence, damage to the spinal cord can result in permanent paralysis to the body parts below the site of injury. Continue Reading »
A group of researchers would like to broaden urologists’ conception of common complications from indwelling urethral catheters to include more than urinary tract infections.
In a review of studies on mishaps stemming from these catheters, the team found among an array of non-infectious complications that leakage or incontinence occurs at a rate of 11% and that spinal cord injury patients have high rates of bladder stones and gross hematuria.
The investigators believe this signals the need for much more focus on preventing these events. Continue Reading »
SpinalMap: An Essential Read for Partners, Friends, Colleagues and Care Givers of SCI patients.
The recently released ebook, SpinalMap, has been described by a rehabprofessional as an “essential read” for both recently injuredpeople as well as family, friends and associates of people who havesuffered spinal cord injury.
For close friends and relatives, SpinalMap provides insight andinformation that will help them better understand what the patient isgoing through and what to expect once the patient comes out of rehab. Continue Reading »
China will probably have 1 million people with spinal cord injury in 2020 (80,000 per year). One third of the spinal cord injury people in the world. The US has about 10,000 spinal cord injury patients per year.
Wise Young, MD, PhD Professor and Chair, Department of Cell Biology and Neuroscience, Rutgers University Director, W.M. Keck Center for Collaborative Neuroscience Presents a talk at the March 2008 Spinal Cord Workshop: “Spinal Cord Injury: What are the barriers to cure?” Continue Reading »
Technology is one of the most powerful tools that can be provided to people with spinal cord injuries (SCI). It is widely accepted among user and clinical communities that wheelchairs can be tremendously empowering when properly selected, fitted, and the users are adequately trained. Unfortunately, wheelchair users are being negatively impacted by misguided changes in reimbursement for wheelchairs and associated technology resulting in them obtaining lower quality products. To make matters worse, newly injured people rarely receive sufficient training in wheelchair skills and maintenance, leading to premature wheelchair failure, injuries and down-time for users, and higher barriers to community participation. Conversely, new technologies show promise to increase the capabilities of people with SCI, but will trends change and make these technologies available and reimbursable? Science must push ahead and show the possibilities, while advocacy must drive policy to catch up. Continue Reading »
“I pulled my jeans out of the wardrobe and my GAP hoodie. I did my hair for the umpteenth time and took one last look in the mirror before heading back downstairs. Little was I to know, but that would be the last time that I would be able to walk down a flight of stairs. I have never seen that bedroom again.”
Hannah Rose had a loving, normal childhood and grew into a typical teenage girl. At the age of fifteen she developed a pain in her back and went into hospital. Within days she was completely paralysed from the neck down. Continue Reading »