Friday, August 29th 2014

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Articles Tagged: Quality Of Life

Sailing a lifesaver for record-breaking quadriplegic yachtswoman Hilary Lister

Published: May 6, 2014 | Category: News | Spinal Cord Injury:

British quadriplegic sailor Hilary Lister is paralyzed from the neck down but, despite her disability, sails using three straws and has undertaken a litany of challenges.

(CNN) — Hilary Lister had had the difficult conversation with her husband — a few times in fact. The quadriplegic had finally made the decision to end her life, had prepared to say goodbyes to Clifford and the rest of her family.

“It got to a point where I evaluated my life,” Lister told CNN. “I had to decide whether the space that I take up on the sofa [which unable to move she had done for hours and days on end] was still worth inhabiting.

“I came to the conclusion it wasn’t. I was at a very, very low point.

“I knew if and when my condition got any worse I would end my life. That was a decision myself and my husband were both aware of. You don’t make that decision on your own, you have to prepare yourself.” Continue Reading »

Rediscovering Love: My 6-year-old and her quadriplegic Dad

Published: December 27, 2013 | Category: News | Spinal Cord Injury: ,

6-year-old and her quadriplegic dad(CNN) — Let me tell you about the amazing kid who lives in our house. She’s 6 and she is the most hysterical, sarcastic, intelligent, funny, sweet, naïve, confident, strong, independent, considerate person I have ever met. I have no idea how she got to be this way.

You see, my husband is a quadriplegic. I care for him, I work full-time, and there are days when I feel like our daughter gets very little of my attention.

Isabel was 6 months old when her dad was injured. Continue Reading »

Reconciling Life and Quadriplegia

Published: December 5, 2013 | Category: Featured Information | Spinal Cord Injury:

Reconciling Life and QuadriplegiaHealthcare providers tend to think paralyzed people have a very low quality of life. Actual spinal cord injury survivors tend to feel differently.

Earlier this month, a 32-year-old husband and father fell 16 feet from a tree while hunting, broke his neck and was left paralyzed from the neck down—making him quadriplegic—and reliant on a ventilator to breathe. According to the Indy Star, while he was still in the intensive care unit, in the early phases of his injury, his family told his health care providers that they didn’t think that he would want to live as a quadriplegic. According to the story, the doctors discontinued his sedation, and he awoke enough to verify that he did not wish to live as a quadriplegic. The doctors discontinued life sustaining measures and he died about five hours later, surrounded by his family and friends. Continue Reading »

Christopher & Dana Reeve Foundation Awards 74 Nonprofit Organizations Quality of Life Grants

Published: July 11, 2013 | Category: News

Reeve-Foundation-logoShort Hills, N.J. – (July 11, 2013) The Christopher & Dana Reeve Foundation announced it has awarded over $500,000 in Quality of Life Grants to 74 nonprofit organizations in the United States. Grants requests are evaluated and scored using a rigorous review process to select for funding outstanding nonprofit organizations that empower individuals living with paralysis. The program has awarded 2,205 grants totaling nearly $17 million since its inception in 1999. Continue Reading »

Spinal cord injuries change lives in drastic ways

Published: June 18, 2013 | Category: Information

Imagine what it would be like after a spinal cord injury.

If your legs were totally paralyzed with no active movement, how would you get out of bed? You can’t stand up, so you would put a thin piece of wood called a sliding board underneath you and use your arms to slide your body down the board into your wheelchair. What if your spinal cord injury was at the level of your neck and your hands were totally paralyzed. How would you feed yourself? You would wear a special brace attached to your wrist that would hold the fork for you. Continue Reading »

Spinal Injury Cures: Balancing Hope And Expectation

Published: April 19, 2013 | Category: News

Disability: learning to live with realistic hopes.Reports of paralysed animals walking again can give unrealistic hopes to people with spinal injuries. What is more important is that they develop the skills and perspective to get on with their lives

A recent breakthrough in regenerative medicine saw paraplegic dogs regaining some function in their back legs: inevitably, the headlines talked of hope for human patients with spinal cord injury.

But the head of clinical psychology at the National Spinal Injuries Centre, Professor Paul Kennedy, argues that this kind of “magic bullet” reporting can be damaging to people who are coming to terms with a life-changing injury. Continue Reading »

Beyond The Chair

Published: October 1, 2012 | Category: Links

www.BeyondTheChair.org

Beyond The Chair exists to provide an improved quality of life for individuals with spinal cord injuries and other neurological disabilities through intensive exercise programs to enhance overall functional capacity.

Leeds war victim is bionic marvel

Published: May 9, 2011 | Category: News

War veteran Adam Douglas has become a Bionic Man in his battle to recover from horrific injury.

The 43-year-old suffered horrendous spinal damage after he was blown up by a rock-propelled grenade.

He was one of the first casualties of the 2003 Iraq war and spent nine months in hospital being treated for a double back fracture and spinal cord injury.

Adam, from Fearnville, Leeds, had to use walking sticks and was unable to control his bladder or bowel.

But now a £20,000 operation to have electrodes surgically implanted into his tailbone – attached to two pace-makers hidden under skin in his lower back – has given him his dignity back. Continue Reading »

How I Roll

Published: March 18, 2011 | Category: Links

HowIRoll.com

This blog is designed to help anyone newly paralyzed and permanently confined to a manual wheelchair.

 

Small change makes a big difference

Published: February 7, 2011 | Category: News

While eyeglasses can be an inconvenience, they can be limiting for people like Dan Larsen, who has been paralyzed for 11 years.

Vanity, expense and convenience drive people to laser vision correction surgery. Necessity is what motivated Dan Larsen.

The 27-year-old Middletown man is paralyzed from the shoulders down. He has limited use of his arms, but no use of his hands or fingers. Continue Reading »