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World’s First Child-Sized Exoskeleton Aims To Improve Quality Of Life Of Kids With Spinal Muscular Atrophy

Published: June 13, 2016 | Category: News | Spinal Cord Injury:

A research team in Spain has developed the world’s first exoskeleton prototype to help disabled children learn how to walk and sustain mobility. Continue Reading »

Tommy Hilfiger Launches Adaptive Collection for Children With Disabilities

Published: February 23, 2016 | Category: News | Spinal Cord Injury:

adaptable mainstream clothingNow, children of all abilities can wear Tommy Hilfiger clothing.

A nonprofit organization called Runway of Dreams worked with the brand to launch an adaptive version of select styles from its children’s line, which will be on sale starting Tuesday.

Mindy Scheier, a fashion designer, founded Runway of Dreams to work with the fashion industry and adapt mainstream clothing for people with different abilities. She started the organization after her son Oliver, 11, who has a rare form of muscular dystrophy, asked her to buy him a pair of jeans.  Continue Reading »

Luke Skywalker Inspires Real-Life Hero To Battle Muscular Dystrophy

Published: May 8, 2014 | Category: News | Spinal Cord Injury:

Christopher Rush and Jerry Lewis, circa 1983 (Photo credit: Muscular Dystrophy Association )

A young boy, facing overwhelming odds with little hope of success, turns to a Jedi Master and “the Force” for guidance, and eventually inspires the world. This isn’t just the science fiction of Star Wars, but the reality of an inspiring young man named Christopher Rush.

Christopher was diagnosed with muscular dystrophy at seven months, and his doctor told his parents that he “will be nothing more than a dishrag and will be dead by the age of two.” Despite the dire prognosis, as well as having to go through life as a quadriplegic, he was able to accomplish things most able-bodied people can only dream of.

As a huge fan of the Star Wars franchise, Christopher empathized with the protagonist, Luke Skywalker, who used the mystical power of the Force to achieve the impossible. Christopher wasn’t able to move his limbs, but with the power of his mind and sheer willpower, he was able to move mountains and inspire millions. Continue Reading »

Fun Without Walking

Published: September 30, 2013 | Category: Links | Spinal Cord Injury:
Fun Without Walking

Fun Without Walking

4 Wheels, 2 Hearts, 1 Mission! A blog by a couple who live in TX and write about disability issues. Michelle was diagnosed with Limb Girdle Muscular Dystrophy when she was 40. Continue Reading »